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CSR & Partnerships

We collaborate with corporates, foundations, and institutions to accelerate access to first-in-human gene therapy for CDKL5 Deficiency Disorder in India.

If you represent a corporate, foundation, or CSR committee and would like to review our CSR presentation, please request access below.

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CSR materials are shared on request to ensure accuracy and relevance.

Frequently Asked Questions

â–¶What is CDKL5 Deficiency Disorder?
CDKL5 Deficiency Disorder is a rare genetic neurological condition caused by mutations in the CDKL5 gene, leading to early-onset seizures and developmental challenges.
â–¶Is there any treatment or clinical trial in India?
Research and clinical programs are actively progressing. Please contact us for the latest verified updates.
â–¶How can families join the CDKL5 community?
Families can register through our Newly Diagnosed page to receive support, guidance, and updates from the CDKL5 South Asia community.
â–¶What is CDKL5 South Asia?
CDKL5 South Asia is a nonprofit organization supporting families affected by CDKL5 and other rare genetic disorders through awareness, advocacy, and research support.
â–¶How can I get involved with CDKL5 South Asia?
You can volunteer, donate, or participate in events. Please contact support@cdkl5southasia.com for details.
â–¶How do I get a refund on my donation?
Donations are generally non-refundable. If you believe a donation was made in error, please contact support@cdkl5southasia.com within 7 days with your donation details.