Newly Diagnosed with CDKL5?
You are not alone. CDKL5 South Asia is here to support families with guidance, trusted information, and community connection.
If your child has recently been diagnosed with CDKL5 Deficiency Disorder, registering with us helps ensure you receive:
- Trusted information and research updates
- Guidance on care pathways and support options
- Connections with other CDKL5 families
- Updates on clinical research and trials in India
Registration is optional, and all shared information is handled with care and confidentiality.
Register a Newly Diagnosed Child →or
Join Parent WhatsApp Support Group →You may leave the group at any time.