Nihira was diagnosed with CDKL5 Deficiency Disorder in early infancy.
From the very beginning, seizures became a daily struggle, affecting not just her health but the entire family’s emotional and financial well-being.
Despite limited treatment options in India, her parents continue to fight for awareness, research, and access to future gene therapies — not just for Nihira, but for every child affected by CDKL5.
Hope is in our DNA.